How It Feels Like To Be Blind

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First, can I just say that nobody uses the word ‘blind’ to describe us anymore? Just the same way you don’t say ‘disabled person’ because surely, the person has to come before their disability. So you say ‘person with disability.’  So don’t say ‘blind’ say, ‘person with visual impairment.’ When you call us ‘blind’ you are magnifying the blindness, making ‘blind’ the subject and ‘person’ the object.

I believe that when God takes away something from you, he always replaces it with something else. Sometimes it might not even be God who took it away, but for sure he will be the one who replaces it. The problem with people is that we focus so much on what was taken away, what we don’t have, and completely miss the beauty of what he replaced it with, what we do have. What God replaces will always work better than what he took away. My journey without sight has been about me finding out all these beautiful qualities that God replaced my sight with.

For example, I have excellent memory and extraordinary sense of smell and touch. Those are my eyes now. I’m extremely talented at telling good people from bad people by just hearing their voice and “feeling” their presence. The air they bring with them. The goodness or badness of a man is buried in what their words sound like. That is, if you listen. Yes, words have sounds, and I am able to tell which part of your body your words came from depending on how they sound. I have never been wrong about people using these skills. Non-genuine people have words that come from their mouth, words that come with no meaning, no emotional attachments. Words with a flat tone. Genuine people let their words out from their hearts, somewhere deeper, words that come with a distinct sound.

I can tell how big, how tall, how fat, how slim a person is in the first minute of meeting them. How? First, their footsteps; big people have heavier footsteps, lighter people step on the ground more lightly, short people generally walk faster than tall people.  I could be standing by the lift and I hear someone approach and I can estimate how tall or short they are. If you speak from across the room, I will be able to tell your height from the projection of your voice. If we shake hands, I will tell your size from the texture and shape of your hands. I don’t think I could do that if I had sight.  

Oh, my name is Loice Bunei. That’s Loice with a “c”. I’m 31 years old. I work as a Customer Retention Agent in the Client Care Center of Standard Chartered Bank. I sit here at the main branch. By the way I forgot to ask you, Biko, can we get you some tea? [No tea for me, Loice…with a “c”].

 

I was born sighted. I remember my village in Kuresoi, a cold but beautiful place. My parents didn’t have money; we had a few cows in a small boma. We lived in a small stone house. Tall trees framed our boma.  I had tons of friends growing up, we would run into the forest to eat wild berries and go down to the river to catch frogs. It rained a lot in Kuresoi, well, it seemed  that it was always raining and the air was so fresh. My neighbours grew tea on their farm. I remember the texture of tea leaves, when we used to run through the bushes.

I have a condition called Retinitis Pigmentosa, which in short is the degeneration of the retina. It’s genetic. You can’t do anything about it, can’t treat it, so you simply have to wait for the darkness to engulf you. In primary school my eyesight was at 70%., by form two I was at 30%. Fellow students wondered why I didn’t just go to Thika School for the Blind. Simple answer, I refused to. By form four I was at 100%. What you call total blindness. Darkness had come. I started learning braille. I joined Kenyatta University, studied Bachelor of Arts, Education. For teaching practice I refused to go to a special school to teach, instead I went to a normal school. Who says I have to teach kids with special needs? I think I was fighting this “handicap”, rebelling, I wanted to prove that I can do what sighted people do.

Looking for a job after Uni was the hardest thing. Most companies don’t employ people with visual impairment. Some companies told me that they “don’t employ blind people because we don’t have the facilities for that.” And I would ask them, “What facilities do you think I need?”

And so coming here was a dream. Standard Chartered giving me a chance is really something I thank God for because I really didn’t want to end up as “that blind teacher.” There are three of us here, visually impaired staff, but we do tasks that people with normal vision do. If you are a client and you speak to me on the phone you won’t be able to tell I’m visually impaired, will you?

There are no blind people, only people who can’t see. The latter is worse than the former. I bet people always feel sorry for me because I can’t see things like sunset. [Chuckles]. I bet I “see” the sunset better than most sighted people. You know when I go back to the village, I always stand facing the sunset, because I remember how the sun would set in the village. I can stand there and feel the soft glow of the sun on my face, and “feel” it. Most people just look at sunset, they don’t see it or feel it. What use is your eyesight if you don’t use it? The sunset in my head is much clearer and warmer than when I had sight. I can look up at the sky at night and feel the calmness of the stars, I don’t have to see them physically. I can always see the moon and the stars in my heart.

I live alone. I know every inch of my house. When arranging my furniture, I did it purposefully to aid my movement. If you come to my house and move a chair an inch, you will have disoriented me completely. I can walk into my house and tell if someone moved something.

[Most ladies stand at the closet for 20hrs thinking “Hmmm, can this yellow top go with these beige pants?” How do you choose your clothes Loice, certainly not by colour I suppose?]

I also stand outside my closet, but for me I run my hand over my clothes. I can tell all my clothes by their colour and texture. For example, I have five black trousers, and I can tell all of them apart by the tone of the black and their texture. I know all my blouses by their designs and colour, and the same with my shoes. When I go to buy my clothes I usually ask what colour a garment is and then I feel it with my hands and try it and that remains in my memory. Thankfully, I trust the guy who sells me clothes, otherwise I would be walking around with luminous trousers thinking they were brown. [Laughs]. So yes, I also pick my clothes depending on my moods.

My bed faces the window. When I wake up and open my curtains, I can tell without opening my window if it’s a sunny or a gloomy morning. Naturally, there is the warmth of the sun in your face, but also I will listen to kids playing. If there are more kids playing it’s a beautiful day, but if the estate is silent, most likely it’s a gloomy day.

How do I get to town every morning? I jav. My sister – who doesn’t live too far from my house – picks me up and we come to town together. I know most streets in the CBD. I think my memory is twice as good as your memory, Biko, because that’s all I have. I mark streets using sounds and the texture of the pavement. All pavements may look the same for you but they certainly don’t feel the same under my feet. So Wabera street feels much different from Harambee avenue. Even the noise levels are different. Downtown is much louder than uptown. I can sometimes tell a street by how far the cars are from the pavement. When I walk I absorb sound and store them. Then there are certain unique markers; for example there is always some blind beggar who blows some musical instrument near Old Mutual. I can hear that sound from the next street and tell which direction that street is. If one day someone moves him to a different street, I might walk into a different building thinking it’s Old Mutual. [Laughs]. I’d love to buy a car and hire a driver, because the one thing I struggle with is movement, I have to depend on someone else to move.

Am I seeing anyone? Are you going to write that, Biko?! [Laughs] I was seeing someone but we broke up. Well, he…OK, I can’t talk about him here, it wouldn’t be OK, sindio? But I like men like any other girl, of course. [Laughs]

[What’s the first thing that attracts you to a man?]

His voice. I can tell what kind of a man he is by his voice. I can tell the aggressive ones, the dishonest ones, the tender ones, the confident ones, the weak ones, the bullies and the crazies. I like my men’s voice deep. I find it comforting, gives me assurance and security. I can tell the size of a man within moments of meeting him by touching him and he won’t even know I touched him. Normally to tell their exact size I touch their arms. Then later I can touch his face to know if he’s good looking or not, but some men offer up their faces to be touched before I get to it. Can I touch your face? [She does].

The most beautiful sound for me? [Long pause] I love the sound of birds.  I love birds, they are so free. When I go to a place with trees, I like to go near them and listen to the sound of birds and the sound of the breeze through the trees, and how the leaves rustle and move. I love it.

[So if someone wants to steal your heart all they have to do is take you to a forest?]

Yes , Biko. [Laughs out loud].

My condition is genetic, like I mentioned. Two of my siblings are visually impaired. All the same, I want kids of my own even if there is a good chance they might be visually impaired. Is it selfish? Maybe. But I will offer them love and look at me, I don’t have sight but aren’t I happy? The best gift you can give a visually impaired child is education. And love. Education is a sight.

Am I visually impaired in my dreams? That’s such an odd question! [Laughs] You know, sometimes I dream I’m fully sighted in my dreams, other times I’m not. [Pause] Wow, that is indeed an interesting question. Next time I dream I will see. [Pun!]

[Do people send you memes in your whatsapp group and does that frustrate you?]

Haha! Aki the things you ask! [Laughs loudly] I have special program on my phone that reads my messages not pictures or memes. I’m on whatsapp and yes sometimes someone will send a meme but I will always ask someone to tell me what it is. And that can never be the same, can it?

Blue is my favorite colour. People say I look good in blue.

There are countless of kids out there who will lose their sight because their parents are poor or ignorant and don’t know any better to seek medical assistance to correct them. Their lives change in the darkness that ensues.  And for children, you can imagine the agony of not being able to open your eyes, to see your family. You feel locked inside this dark lonely place. Those kids need help, they need not lose their sight. The gift of sight shouldn’t be underestimated; for some of these kids it means the difference between success and poverty. Also not all of us who lose sight go through proper rehabilitation, and it can be so hard when you grow up thinking you are abnormal, thinking that you don’t deserve what every other child deserves.

I have run in two Standard Chartered marathons; ten kilometers. I do it because I know the struggles of losing your sight. I run so that some child child can be able to see the things I can’t see, the things they want to see. Changing someone’s life, someone like a child about to lose their eyesight, doesn’t take a whole lot. It takes us blocking a whole morning and wearing our shoes and running this marathon. Most of you will come out and run and have fun doing it, get a medal and go home  and not know how much impact they have had in someone’s life. Every time you run the marathon and you get medal, that medal represents your compassion for someone else. It means you cared, you gave someone sight to see. And that is powerful. So Biko, please ask them to register here and help us give these kids the gift of sight.

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    1. When she said when people call us blind is offensive, was she for real or was it just a light moment because she just mentioned a blind beggar. Or is it just me?

      1. It’s just like when prostitutes can call each other prostitutes but when other people call them so, it’s offensive. Comprehend?

        1
        1. It’s a ‘nigger’ joke! Another black person can crack or laugh about it, but if a ‘non black’ person dares to…..

      2. I think its coz both beggar and blind are both the objects in that sentence. Its the subject that’s missing which happens especially if you don’t know someone’s name. Ati beggar blind, that won’t be grammatically correct

    1. I’m curious what you started thinking about? I bet it made you repent for all those times you looked at people with bad eyes 🙂

  1. Being visually impaired w/ myopia since I was a child & living most of my life wearing spectacles, losing my sight is one of my great fears in life. But she makes it not so scary. And it’s also interest how the body compensates for loss of one sensory function w/ other more interesting ones. Encouraged by her motivation.

  2. That is some elevated level of senses! Yani Loice…with a “c” can tell if I am a eating all the food in the fridge from the weight of my footsteps? Classical. Now I know that sight is not in the eyes all the time! Good read Biko. And register for the run gang so and make the difference and also to make sure if you ever pass by Loice…with a “c” you will not sound like a baby hippo 🙂

    1. Peter Wesh..yaani you got jokes!!! ‘Make sure of ever pass Loice with a “c” you will not sound like a Baby hippo’ Almost fell off my sit!

  3. Was beginning to wonder if “we are happening” today. I love the piece plus the question/answer style you have used Biko. Loice is a brilliant lady and i love the fact that she has completely refused to be “segregated” based on her visual impairment.

  4. Woooah! Honest and brutal on the mind. Her clarity is profound, unpretentious, you can feel her strength in the words of your story.

  5. Wow! I just wish many employers could be like SCB and give a chance to people with special abilities to serve their purpose in life. Good read kama kawa.

  6. Wow, always thank God for what you have. Big, small, almond shaped… as long as you can see. Do not take it for granted. Good read.

  7. Wow,just wow.. That made appreciate the things i take for granted ..and i already love Loise with a c..Shes such a joy.. Thanks Biko

  8. “Are you visually impaired in your dreams?” – Brilliant writing as always, so not blind…just visually impaired

  9. She referred to, “the blind beggar who plays music near Old Mutual buolding” yet she is against the term “blind” name used on her?

      1. Deep , deep, deep…….loice with a c you inspired me today I will appreciata alot of things today…!!! Thank you Biko

    1. Maurice, good example, black men can comfortably call each other “niggas.”
      If you white and you call a black man “nigga” it will be offensive.
      Get the logic?

      1
  10. This is such a beautiful piece. I was at the opticians one day and this man walked in holding his daughter’s hand. I could tell that she had difficulty seeing. She was such a cute little girl and my curiosity got the better of me. I approached a guy that had accompanied them and asked him a few questions. I couldn’t believe what I heard. The girl started developing eye problems when she was a baby but the farther refused to take her to the hospital because either he didn’t care or he thought she was bewitched. And just like that the poor little girl was on her way to “visual impairment”. Their being there that day was because a neighbour threatened to go report the dad to the police.
    What Loice is doing is very good. Giving voice to the voiceless. God bless you.

  11. Oh My God!!! I’ve heard that repeatedly as I read this. Too good to be true. Inspired. On the lesson on nonverbal cues, noted.

  12. “The problem with people is that we focus so much on what was taken away, what we don’t have, and completely miss the beauty of what he replaced it with, what we do have.” Deep stuff. This piece is truly inspiring.

  13. Those are amazing abilities you got there Loice, this is such a beautiful piece.
    Enyenyewe Biko you were creative with your questions, mpaka hoe she dreams!

  14. My dad is visually impaired and this article hit home. Just like Loice, he too is totally independent and quite happy in his own skin.

  15. So deep and inspiring. She has touched my heart. I love her positive vibe. God bless her so much.
    Stanchart Marathon is a must.
    www.ogetoevans.com

  16. I’ve been blind to the visually impaired’s extra gifting. So many questions always on my mind when i pump into one have been answered. Indeed God ‘..giveth more grace when the labour increase…’ They are super humans!! Really good read, now, back to ‘register here’

    1. There’s one i used to see at school and she was always the neatest and i kept wondering who picked her closet, who irons for her, how she matches the colors. it never looked possible. i also have my answers now.

      1
  17. Profound…There’s no pit so deep that God is not deeper still.
    https://www.instagram.com/travelogues_africangirl/

  18. I have closed my eyes a number of times and imagined what you see(what you ‘see’ after you open your window is probably better than what i see because i mostly see nothing)
    “I run so that some child can see the things i cant see,the things they want to see” is beautful and we should run so that some child can see the things we sighted people dont appreciate seing,the things they imagine we see.

  19. >> “The problem with people is that we focus so much on what was taken away, what we don’t have, and completely miss the beauty of what he replaced it with, what we do have. What God replaces will always work better than what he took away.” Priceless.

  20. Wow!!! And I sit feeling short changed because I cannot get around as fast as I used, because of a broken tibia which will obviously heal. Loice you just made me see my situation a whole differently.

  21. “Eye opening” is all I can say. Cliché, sorry for that. Wow, makes me think that I go through life without appreciating anything. Just in the “rat race” and looking at the Joneses.” Informative piece. Let me look at that Stanchart Registration.

  22. Beautiful. Loice with a ‘c’ must be a really intelligent lady. Contentment, really does beget happiness.

  23. Wow good one Biko, may we always be reminded to be thankful for who we are and what we have in life. I love this lady’s attitude, she makes it seems so easy, may we all learn one or two things from here.

  24. this piece is super inspiring, more so because it doesn’t sound reported or too emotional. As always good stuff Legend.

  25. Changing someone’s life, someone like a child about to lose their eyesight, doesn’t take a whole lot. It takes us blocking a whole morning and wearing our shoes and running this marathon. So this is me taking up the challenge to change someones life.

  26. Very inspiring. I am trying to bring up a visually impaired 8 year old girl and i have so many questions.
    I wish I could meet you Loice.

  27. When you ain’t sure whether to sympathise or be very proud of Loice and other people living with disabilities.

  28. To feel things is better than to hear things. When you listen with the heart, your world is richer. Visually impaired or not, listen, see,feel and hear things with the heart. That makes one a whole being.

  29. Good read as always…. Challenged by Loice with a C… Still dont know streets in Nairobi and I can see… Am soon taking a tour to purposely learn Nairobi streets name

  30. I am one of those who look at things without seeing them…. Thanks to Loice..with a c, i will look at things differently from now on!

  31. I didn’t see the Marathon bit coming? October is already here? Thanks for the reminder Loice with a C. You are a beautiful soul – “What use is your eyesight if you don’t use it?”

  32. …..And then I stopped to buy some sweets
    The lad who sold them had such charm
    I talked with him, he seemed so kind
    “It’s nice to talk with folks like you, you see” he said, “I am blind”
    Oh God forgive me when I whine,
    I have two eyes and the world is mine.

  33. Biko, kindly link a close friend of mine called Evelyn with Loice. She lost her sight late last year as a result of misdiagnosis. She was treated for pneumonia but there was no improvement. Then she started having blurred vision.. That was when a doctor discovered that the nerves around her eyes had been infected. She was taken for surgery but it was too late. The nerves were already damaged. She’ll go for rehabilitation soon then learn braille so that she can find a job. She needs guidance from someone like Loice who lost her sight in adulthood.

  34. Deep stuff. Lovely piece. My campus room mate was visually impared/blind..it was scary at first but later became such joy bonding with him about the various people, how they look, food, lecturers. He was spot on when it came to judging of character. I miss him…as he passed away immediately after we cleared campus.

  35. Loice with a ‘c’ , lovely lady. hats off!
    p.s. Biko you forgot to mention Loice’s verdict on your famous forehead .

  36. Very profound and that right there is the power of a positive attitude. You can see things that people with sight cannot.

  37. Loice with a “c” is wise. So many quotable gems. I love her sense of humor and outlook in life. I like her. I hope she gets to know(via her phone program) how she has impacted so many people through her words today.
    Thank you Biko. As always.

  38. This has made me want to close my eyes on a regular and ‘feel’ things more, things I would ordinarily just depend on my eyes to see.

  39. I have progressive myopia, I am in constant fear of losing my eyesight, or making my kids grow with spects all their life like me,without my spects, I can’t function at 100%, glad she makes it sound less scary than my mind puts it

  40. Lovely story, touching and great product placement Biko, easy on the mind, informative wihtout losing the story.

  41. Na Kwani you guys woke up what time to be the first to post your replies …..Hamulalangi
    Great Piece Biko very motivational and just goes a long way to teach us that disability is no where near inability….
    Loice with a C ……. Way to go Girl your spirit is very encouraging

  42. Can a retina donation help? And talking of donations, I’ve, for the longest time, wanted to donate my organs when I move on. I’ve researched and not found an org. that accepts. Is there one/ If not, how about we form one? My heart, kidneys, liver, lungs, bone marrow, retina, spleen and everything else donateable would do much better helping another human being than being “chakula cha mchwa”.

    1. Same sentiments here. There’s however a Lion’s Eye Hospital (not sure of the name)signage outside Nairobi Hospital Hurlingham that has provided contact details for donation of eyes. Maybe they would help in providing info on options for other organ donation centers.

    2. Retina replacementis still pretty much under testing,not sure if it’s now possible.Id hoped to be a beneficiary earlier on in my life.

  43. She sounds so beautiful. Plus she has humour. I loved everything especially knowing so much by just a voice or a touch.

  44. She is special. Not in an impaired kind of way but a GENIUS kind of way. I mean, she practically runs her own life. Perfectly.

  45. Biko I like the angle with which you have advertised Stanchart Marathon, by bringing someone who understands the life of a visually impaired person and has risen to beat the odds. Good one. I hope more people will register to participate. Loice with a c, keep going. this is such an enlightening piece.

  46. Biko you’re a genius. Best invitation ever. On it. Loice with a C is such a strong woman. But wasn’t she taken back by the surface area of your forehead when she felt your face?

  47. Loice with a C you have been such an inspiration to me since i came to know you, you are such a brave and interesting person.You have indeed proven that disability is not inability.God Bless!

  48. Beautifully written,the angle of the story is wonderful. It has taught me to appreciate the little things in life like sunset.

  49. Kusema na kutenda…my bank Standard Chartered, new respect for you embracing those that are visually impaired!! This story is so touching – thanks Loice with a c for sharing!

  50. How sobering, the things we take for granted. Loice must be a wonderful lady. Biko thanks for sharing her story.

  51. This piece has made me to ask myself if I really value my sight. If she can enjoy the sunset more than I do then I need to start using my eyes to value the things that I see. Its true disability is not inability. Keep it up Loice I like your attitude.

  52. There are no bling people, only people who can’t see… big up Loice (with a c). All the very best ♥

  53. There are no blind people, only people who can’t see… big up Loice (with a c). All the very best ♥

  54. Beautiful piece.. must be an intelligent lady Loice with a ‘c’….explains my colleague’s extraordinary sense of touch, hearing and to a great extent determination of one’s character as you have stated through “feeling” their presence. Indeed’ There are no blind people,only people who can’t see …
    Thank you

  55. Mum lost her eyesight as an adult too.its been tough on me being an only child.she went to rehab and does pretty much everything by herself and way better than myself. I’ll def register because I know what it feels like to her. sight is a beautiful thing when its from the inside but would be much better from the outside.let’s run.Loice you are beautiful in every way there is

  56. Profound… Now my dear Loice with a ‘C’… did you feel that forehead…the long one asking funny questions 🙂 Btw, does a long forehead make people change their tone, walking style… please tell us… 🙂

  57. Thank you Loice with ‘C’.You’ve actually made me appreciate everything God has given unto me.The Most touching part is…”The problem with people is that we focus so much on what was taken away, what we don’t have, and completely miss the beauty of what he replaced it with, what we do have. What God replaces will always work better than what he took away….” Absolutely inspirational. In fact your closing remarks are more than enough reason for anyone to choose to participate in the Stanchart Marathon.Kudos Loice with a “c”

  58. Oh very inspiring.I always thought it was freaky that I feel peoples vibe,and
    can easily tell what kind of person they are and I can not remember ever being
    wrong even total strangers that I meet people for the first time. Loice I like
    your attitude.

  59. Another great piece from Loice. Reminds me that I should not take things I have for granted! This is also reason enough to register for the marathon!

  60. I had to comment today! I love how you approached the topic/pitch Biko. Touching but not gloomy or beggarly. Why didn’t you write about her reaction to touching your forehead though??

  61. seeing is believing,i will register and be part of giving the children sight. God bless you Loice with a c with a good man

  62. ..totally inspiring. I love this bit……..’The sunset in my head is much clearer and warmer than when I had sight. I can look up at the sky at night and feel the calmness of the stars, I don’t have to see them physically. I can always see the moon and the stars in my heart’.

    some of the things we take for granted!!

  63. how I wish I was near her for her to listen to my deep voice and touch my arms.Anyway she is a champion to in real life.

  64. Yeah, no kid should be visually impaired due to lack of know how or know what. So Biko, now that Loice with a ‘c’ touched your face, are you goodlooking ;). Do tell Biko, what was the feedback? hehe

  65. Inspiring piece with such a challenging positive vibe from Loice with a ‘C’ brought back many memories from a period when my worst fear was going to begin life anew at Blind School.Sometimes getting people to accommodate visual impairment can really become a toll order But we can only hope that they can find it in their hearts to be humane.Insipired.

  66. “Focus on what you have and not wat you have lost”
    Thats what makes me or people get stuck….thnks to her i just opened the next door to success

  67. Wow Loice, What an inspiration. I knew you were a strong woman from the time we were in college. I was challenged by how neat and well organized your room used to be, the neatly arranged clothes and well made bed.I am happy for you dear. All the best.

  68. This is quite a challenge. Until I felt I have not been fully using my senses well. Loice is such a person.

  69. This is a very gud piece.Am taking up the challenge to participate in the marathon and i hope more pple do. It feels gud to be part of a good change for someone. Before then i hope Loice answers the question about her dreams. Am curious!!!
    Be blessed Biko

  70. another blogger who writes just as well is this kenyan/Rwandese guy Caymil. check out his work caymil.wordpress.com

  71. Loice is just an amazing person. I have interacted with her closely in an International Conference and she is just amazing. Sometimes you dont even realise she is Visually Impaired!

  72. The three call me Mama Mkubwa, ya they are my son and daughters; it is amazing how they function, cook, baby care travel great memories, ask me and I tell you God is a God of wonder.

  73. Some of us take it for granted that we wake up n find our sight with us.
    you never know the value of your sight until you don’t have it..
    Loice with “C” you are one of the most positive people on earth. God bless you

    1. *Reading* eeeish! The person who invented autocorrect feature…I just say it like my 5 year old would : you are not nice

  74. Loice Bunei,my best friend.Did i tell you i fell in love with you since i met you in Ku near Kili hostels in that orange suit?
    There has been no looking back for me sonce then.You have taught me a lot in this life…among them patience.
    I love you dear,you made me shed tears of joy….go girl go…tell it on the mountains….can we have more please?ITS SOOO LOVELY!!!

  75. Beautiful article.
    Such self awareness.
    Such powerful narrator.
    Oh…the things we take for granted..
    Thank you for sharing Biko. 🙂